When Leo sees a plate full of faworki (Polish kind of sugarated fritters)
he gets up and goes on all fours across the whole room.
Just like that. As if he was doing it all his life.
After the plate is put on the couch,
Leo approaches it and lifts himself up to a standing position.

Two big leaps in only 10 minutes!!!

Saturation problems start again.
It drops to 78 in the morning.
Leodad is temporarily out of town, and Leomom doesn’t have Berodual,
which usually helps in situations like this.
She doesn’t have a prescription, too.

It’s still freezing cold, so a walk to the health centre is not an option.

Going by car alone is out of question too, as it is danger to Leolife.

Home Ventilation Programme does not prescribe medicines.

Nobody answers the phone at the health centre.
The thought of Leo’s brain not being oxygenated enough is terrifying,
grey matter cells dying…


Magda Hueckel, No title

It’s -15 outside.

Leo can’t go out in this temperature.
It’s been three weeks he’s at home, no walks, no fresh air, no light.

One can go crazy…


Magda Hueckel, Resigned Self-portrait III

Leo’s going to his first children’s party (the Boss’s birthday)!!!
He’s absolutely elated. He’s mainly into food :-)

In between the cake and chips he socialises with other kids and two Spidermen
(he destroys a tower they are laboriously building from building blocks,
and not just once, and then he takes their cake away).


Another meeting with a child who is an Ondine’s victim.

This time, Leo is going to Kubuś, a younger boy with whom he lied at the Children’s Memorial.
(video of Leo and Kubuś)
.

Leo visits another doctor’s office – ophthalmologist this time.

He hates eye drops.

What’s more, another problem arises – astigmatism.

Luckily, it’s not very serious, and there are chances it will recede.
Modigliani is said to have had this eye defect, too. 

Hence, probably, the deformations in his paintings.

No doubt, he perceived the world in a beautiful way…


Amedeo Modigliani, Portrait of a Young Woman

Rotavirus has been defeated!!!

The rotavirus attacks eight more family members.
Taking care of Leo in this time is especially hard…

It’s unclear who should take care of whom.
Everyone is barely alive, Leosaturation is still bad,
and on top of it all we are fighting a constant battle for connecting to the ventilator.
Leo doesn’t accept the ventilator when he sleeps.
Leomom connects him, and he disconnects;
Leomom connects him, and he disconnects;
Leomom connects him, and he disconnects;
Leomom connects him, and he disconnects;
Leomom connects him, and he disconnects;
Leomom connects him again, and he disconnects…
and so the whole day goes by.

This morning, after Leo is disconnected from the ventilator,
oxygen saturation suddenly drops.
Sometimes even to 48%*.
Home methods of breath enhancing don’t help,
and Leo doesn’t allow to be reconnected to the ventilator,
so Leofamily end up in the hospital admission room.
Leo is so weak and floppy that he almost literally flows between his parents’ arms.


It turns out that the cause of this nightmare is rotavirus.
The news is bad also for another reason:
it means that during the infection Leo will have to deal with respiratory failure.
Fortunately, the doctors let us take him back home.
* Saturation below 90% is dangerous and can cause cerebral hypoxia.

Leo doesn’t seem like himself, he lost his appetite…