Leo’s condition is getting worse and worse.
His home ventilator is not enough,
during his sleep Leo has to be connected to hospital equipment.
During watch he undergoes passive oxygen therapy.
It is a big worry for Leoparents, as according to world standards,
this kind of therapy should not be given to CCHS children.
The ward is depressing.
Anywhere you look: bad prognosis, hopeless cases, desperate parents.
In the nearby room two girls, fifteen and ten years old
– both after accidents, both in a coma.
In the bed across Leo’s, a fourteen-month-old girl who came to the hospital
for a laryngological surgery… and now she’s dying of sepsis…