Tests do not confirm heart defect or epilepsy; however,
digestive tract passage and pH measurements show that Leo suffers from gastric reflux disease,
which causes shrinking of bronchus that leads to breathing problems.
If the reflux doesn’t recede after three months of pharmacological treatment,
Leo will have a stomach surgery. This will slow down his,
already retarded, motor skills development.
Additional stress comes from the fact that for CCHS patients’
anaesthesia can be very dangerous – even lethal.