This fact recurs with astonishing regularity:
the handicapped people and their families "enjoy" consecutive proposals
and motions for bills of law.
These will be proposed and ... suspended.
Sometimes they will be dropped.
Then, they fall down onto people, crushing them.
The last-year's "hit" was the bill to repeal the possibility
to donate 1% of a person's tax to a concrete, natural person.
Had this bill been voted for, it would have been a death sentence to many people
as the truth is that thousands of people are able to survive
and continue living solely thanks to the collection of this 1%.
The bill was suspended because of numerous protests and petitions and,
luckily, finally withdrawn.
Instead, with the new year, a new law was resolved – even "better"!
It pertains to the non-invasive ventilation,
that is ventilation with the use of a machine and mask
and/or diaphragm stimulator (which we plan to have for Leo).
This Law reduces financial support to patients by 30%.
As a result, they lose their right for rehabilitation.
As a recompense, they are entitled to one hour of a professional nurse's care
and one visit of a physician at home per....
(please sit down, ladies and gentlemen, or grasp something firmly)…
one quarter of the year!!!
The truth is that our Health Care System
can squeeze these two hours per quarter deep into their arses,
because nobody needs these two damn two hours.
Additionally, for people suffering from some types of diseases (e.g. SM, SMA),
their being deprived of regular rehabilitation means the accelerated progress of their diseases.
Thus, the above Law can lead to the situation that such people
will not be able to undergo treatment at their homes; consequently,
such people will become residents of hospitals, often at Intensive Care Units.
So, they will take away hospital beds from other patients for some time
(the situation reaping a tragic harvest elsewhere) – but this "some time" will not be long,
as such people will soon die from sepsis, hepatitis,
tuberculosis or any other type "attraction" that every hospital has on the menu these days.
