Two weeks ago Leofamily made another journey.
This time they went to Germany, being invited by the German CCHS Association,
and they took part in the meeting of CCHS families and doctors.

Both for Leo, and Leoparents, such events are great experiences.
Leo met children with tracheostomy and pacers (!),
he took part in group plays, he even tried to communicate in english (!).
And Leoparents confirmed their conviction,
that CCHS is just a capacious sack,
full of various different cases.

And, even today, it is hard to guess,
how Leo will end up in the future...

Leoparents brought back some medical news related to CCHS.
They all will appear soon on the website of Polish CCHS Foundation.